My last blog was called Neurodiversity don’t ride this bus. It told the story – as it was relayed to me – of how my eight year old autistic son was put off a Metro Transit bus for screaming. The blog ended abruptly, because the world moves at the speed of Twitter now, and the CBC had phoned – wanting to come talk to us right away. I had to stop writing, not to prepare for the interview, but to madly clean the house lest some cameraman should catch a wide-angle view of the chaos in which we live. I intended to revisit the subject in my blog after the CBC interview was done, but the opportunity never presented itself. I was surprised at their interest, and assumed it was the beginning and the end of media involvement. Then some others picked it up, and the interview schedule got crazy for thirty hours. There were cameramen and reporters in our house and on the phone for the better part of the next days. There were live radio shows and an appearance on Canada AM. It was an unexpected and demanding and extremely emotional two days. We left the city for the night when it subsided, and tried to stop thinking about it for a little while. It wasn’t over yet, though, because we still hadn’t spoken with Metro Transit.
I titled this blog – optimistically – a few days ago, and I left it at that. That was when Erin Flaim, the Manager of service delivery at Metro Transit, called. She wanted to talk with Charlene and I – to open a “dialogue”, in her word – about the recent incident with our son. And she wanted to do so, understandably, away from the cameras and microphones and somewhat misrepresentative editorial practices of the mainstream press. Charlene and I were accordingly invited to her office, and it was an invitation we readily accepted. That meeting with Ms. Flaim (and Public Affairs Coordinator Lisette Cormier) was today, and I came away from it feeling optimistic not just about the seriousness with which Metro Transit took this issue, but about its willingness to cooperatively and constructively work on means to avoid such distresses in the future. I kept the hopeful title.
Ms. Flaim and Ms. Cormier had different versions of the actual incident than we did. They had a film of the incident, after all, which privacy policy unfortunately prevented us from actually seeing. They assert, for example, that the driver did not actually say that Izaak had to get off the bus. The bus was stopped and the driver said he couldn’t continue to drive safely if Izaak continued to scream. The camp director then made the decision, voluntarily, to remove Izaak from the bus. Personally, and I said so at the meeting, I thought this was a semantic point because the driver had created a situation where there was little choice – due to authoritative and social pressure – but to remove Izaak from the bus. So the driver hadn’t explicitly used the words “off the bus” – there are a thousand and one ways to say a thing without actually having to say it. The video says he didn’t say it, and Metro Transit has us at an advantage on that one, because we didn’t actually have a video camera on the bus and we can’t watch the tape they made. But like I said, it’s a semantic point, anyway. Explicitly or implicitly, it was a driver’s words that caused Izaak to be removed from the bus. We tended to agree to disagree with the transit representatives on this point, but we moved on.
I asked Metro Transit to issue a public clarification on one other point, because it sparked some heated comments on some of the stories. There was a lot of hate from a lot of commenters. That kind of stuff can get to you when they’re talking about your son. Lisette Cormier made the helpful suggestion to ignore it, and Charlene has largely been able to – but I’ve perhaps been less successful. Readers of my original blog will recall that the rest of the Autism Summer Camp staff and campers got off the bus one or two stops later because they couldn’t get back into the camp home base without the director, who had the keys and who had got off with Izaak. When the group disembarked the bus and asked the driver for a transfer, they were refused one. Comments to the media by transit spokeswoman Lori Patterson conveyed the impression that the transfers were refused because the group was riding the bus for free. This was simply not true – a fact readily acknowledged by Ms. Flaim and Ms. Cormier – and Lori Patterson’s apparent assertion of it was actually a result of editing for TV news in order to make the story more adversarial. It was a reasonable enough explanation that I let the matter drop. Besides, we all got misrepresented to one degree or another in the stories and the comments.
I offered to issue a public clarification of my own, too, because I accidentally misrepresented our case in a couple of interviews. Because of a misunderstanding when the story was first relayed to me, I thought the camp counselors had asked the driver for a five stop grace in which to settle Izaak down and were refused it. In fact, no such thing happened. That was a result of my own misunderstanding, and I accordingly apologize for it. The rest I stand by.
But since Metro Transit has no intention of publicly commenting on this story again in any way whatsoever, let this set the official record straight. The Autism Summer Camp was not riding the bus for free and all the hate-filled commenters on the various stories who jumped on this notion to justify and spew their hate can just….well, you know what they can just go do.
Although it was a sometimes emotional meeting – Charlene cried once or twice and my voice raised as I had a renewed (but brief) fury at the notion that Izaak had been on the bus for just 3.5-5 minutes total before the driver could take no more – it was also a highly productive meeting. Despite the points of disagreement, Ms. Flaim will send a letter of apology to Izaak and one to the Camp Director, a remarkable man who acted in Izaak’s interests and called due attention to a perceived injustice. My gratitude is with him 100%.
Once the meeting today moved past the actual specifics of the incident and focused on the future, there was significantly more common ground to be found.
Metro Transit doesn’t want to be accused of intolerance and discrimination any more than they actually want to be practicing them. And they sincerely seem to be open to ways of avoiding these situations in the future. They already have a relationship with the Mental Health Association and will be working with Autism Society Nova Scotia and with Artists for Autism going into the future to help generate awareness not just within Metro Transit itself, but in the public at large. They are developing a diversity training program for its operators that incorporates cultural and neuro diversity and are open to suggestions that would enhance that programming. Ms. Cormier eagerly welcomed my suggestion that we place Autism Awareness advertisements on the buses, and are interested in a “tip sheet” for parents of kids with autism and transit drivers alike that Charlene and I offered to develop.
Furthermore, it turns out that the boys are eligible for Access-a-Bus service. It had been a couple of years since we inquired about it, so the rules have either changed or were misrepresented to us at that time. I suggested that Metro Transit make well known to the various autism advocacy groups in the city that their members and constituents may qualify for this service. Left unaddressed was the problem of lack of institutional access to Access-a-Bus. If special needs groups could use this service, the whole incident might have been avoided in the first place.
I suppose all sorts of things were left unaddressed – you can’t fix everything in an hour and a half. But you can take your first baby steps, and this is what we did today. I am enormously grateful to the media (even the few who did some questionable editing) for bringing this story into the public and making people talk about autism for a couple of days. I am even more enormously grateful to Erin Flaim and Lisette Cormier, who recognized the significance of the issue and who wanted to give it more sincere and detailed attention than a soundbite ever could.




